Become a member

Becoming a Member does not mean we expect you to do anything.  It does not mean we expect continual contact with you.  You can dip in and out of the ED Society as much or as little as you like. However, we are always just a telephone call or email away to help and support you whatever your need.  So please do not be put off, become a member and ensure you receive regular updates of news and information via our newsletter.  As a member you will be able to access the Members Section of our website.

Apply for Membership

Click here to download a Membership registration form.

Can you help us with our ED Symptoms database?

We are compiling a database of symptoms to help us better understand the ectodermal dysplasias, how individuals are affected and how we can help find information that will assist with the day to day management of ED.

We should be grateful if you would please take a little time to complete the Symptoms Questionnaire using the link below and return it along with your Membership Form. Any information provided on the Symptoms Questionnaire is confidential and will not be shared with anyone.

Help us to help you ….. Click here to download the Symptoms Questionnaire