FUNDRAISING AND DONATION THROUGH VIRGIN MONEY GIVING
Please note that from the 3rd March 2010 we will be using Virgin Money Giving for all our fundraising, donations and sponsored events please got to www.virginmoneygiving.com...read more >
Date: 02/03/2010

Video - Young teen talks about HED - click on the link below
http://www.youtube.com/watch?v=avg2Ozyfry0 read more >
Date: 02/02/2010

Swine Flue and ED
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Date: 13/08/2009

We have joined FACEBOOK
The ED Society has joined Facebook! We have been informed by a few members recently that there are Ectodermal Dysplasia groups on Facebook and as this is one of the ways in which people...read more >
Date: 03/02/2009