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IRISH get together
A get together has been organised for all the Irish members and contacts.
It will be held on Sunday 10th October between 2-6pm at the Loius Fitzgerald Hotel, Newland's Cross, Naas Road, Dublin22...read more >
Date: 17/08/2010
E D Christmas Party 2010
The E D Christmas party 2010 will be held on Saturday the 4th
December in Cheltenham at 12.30pm at 'Seasons' Conference Centre. There
will be a lunch buffet for all adults and children, Puppets,...read more >
Date: 22/06/2010
E D Society Irish Branch
ED Society - Ireland BranchExciting News -The establishment of a branch of the EctodermalDysplasia Society in Ireland will be warmly welcomed by theparents, families and friends of children...read more >
Date: 24/05/2010
Ectodermal Dysplasia International Registry Information Bringing Patients and Researchers Together On March 1st, the NFED (the ED support group in America) launched the first ever Ectodermal DysplasiasInternational...read more >
Date: 20/05/2010
OUR LATEST NEWSLETTER APRIL 2010 IS NOW AVAILABLE FOR DOWNLOAD
Sign in to the Members Section and download issue number 47read more >
Date: 06/05/2010
FUNDRAISING AND DONATION THROUGH VIRGIN MONEY GIVING
Please note that from the 3rd March 2010 we will be using Virgin Money Giving for all our fundraising, donations and sponsored events please got to www.virginmoneygiving.com...read more >
Date: 02/03/2010
We have joined FACEBOOK
The ED Society has joined Facebook!
We have been informed by a few members recently that there are
Ectodermal Dysplasia groups on Facebook and as this is one of the ways
in which people...read more >
Date: 03/02/2009
