Irish get together 2011
We have arranged our Irish ED get together for Sunday November 6th 2-5pm in the Green Isle Hotel Dublin.Finger food and tea/coffee will be provided. Anyone interested should contact Elaine on 087-6951979 ...read more >
Date: 17/10/2011

ED Familes make the newspapers
Two of our families have made the national and local newspapers and magazines recently you can read their articles by following the links belowhttp://www.express.co.uk/posts/view/267634/A-hot-day-will-kill-meread more >
Date: 27/09/2011

Levi Hawkin E D sufferer is the'BOMB'
To watch this film click on the link http://tvnz.co.nz/20-20-news/levi-hawken-bomb-13-06-video-4260470...read more >
Date: 30/06/2011

OUR LATEST NEWSLETTER SUMMER 2011 IS NOW AVAILABLE FOR DOWNLOAD
Sign in to the Members Section and download issue number 52read more >
Date: 24/05/2011

Max's story Jeans for Genes film
to see Max's film click on the link below http://www.youtube.com/watch?v=cAl6ZoQ7Mesread more >
Date: 01/02/2011

Ectodermal Dysplasia International Registry Information
  Bringing Patients and Researchers Together  On March 1st, the NFED (the ED support group in America) launched the first ever Ectodermal DysplasiasInternational...read more >
Date: 20/05/2010

FUNDRAISING AND DONATION THROUGH VIRGIN MONEY GIVING
Please note that from the 3rd March 2010 we will be using Virgin Money Giving for all our fundraising, donations and sponsored events please got to www.virginmoneygiving.com...read more >
Date: 02/03/2010

We have joined FACEBOOK
The ED Society has joined Facebook! We have been informed by a few members recently that there are Ectodermal Dysplasia groups on Facebook and as this is one of the ways in which people...read more >
Date: 03/02/2009