The Ectodermal Dysplasia Society
Website Terms and Conditions

Please read the following terms and conditions carefully as they govern the use of this website.

All material contained within the Ectodermal Dysplasia Society Website (www.ectodermaldysplasia.org) is covered by a disclaimer and protected by copyright laws.

Access to this website (www.ectodermaldysplasia.org) is subject to the following conditions:

1. Links to other websites
This website contains links to other websites that are operated by third parties. The Ectodermal Dysplasia Society does not accept any liability over the content of these third party sites. The existence of these links does not constitute an endorsement of such websites, and your linking to these sites is at your own risk.

2. Content Accuracy
Whilst all reasonable efforts have been made to ensure the accuracy of content, no responsibility can be taken for any error or omission. No advice or information, whether oral or written, obtained by you from the message boards or chat rooms on www.ectodermaldysplasia.org shall create any warranty not expressly made in these terms of service or imposed by law.

3. Photographs
The photographs of children used in this site have had their names changed to protect their identity.

4. Registration
Some elements of www.ectodermaldysplasia.org may be viewed by anyone, however to access some areas e.g. message boards and any chat room activity; you will need to register as a member. When you register with us you are stating that you are over 18 years of age or are a minor with parental consent to use the service for which you are registering. You agree that any information you provide to us about yourself upon registration or at any other time will be true, accurate and complete, and that you will ensure that this information is kept accurate and up to date at all times.

5. Password
When you register to use www.ectodermaldysplasia.org you will be asked to create a password. You must keep this password confidential and must not disclose it to or share it with anyone. You will be deemed responsible for all activities that occur under your password. If you know or suspect that someone else knows your password, you should notify us immediately.

6. Your use of www.ectodermaldysplasia.org
The Ectodermal Dysplasia Society does not necessarily endorse the views expressed by users, for example on the message boards. You alone are responsible for the content of your messages and your use of www.ectodermaldysplasia.org and the consequences of any such messages. By using www.ectodermaldysplasia.org you agree to comply with the following guidelines:

(a) www.ectodermaldysplasia.org is to be used for your personal use only and use of www.ectodermaldysplasia.org for commercial purposes or to obtain financial gain are strictly prohibited without The Ectodermal Dysplasia Society's prior written consent.

(b) www.ectodermaldysplasia.org may not be used to send chain letters, junk mail, "spam", solicitations or bulk communications of any kind unless the recipient has given specific permissions to be included in such a list.

(c) You may not post to www. ectodermaldysplasia.org any message or material that is unlawful, harassing, defamatory, abusive, threatening, harmful, vulgar, obscene, profane, threatening, racially or sexually or otherwise discriminatory, offensive, inaccurate, in breach of confidence or a third party's intellectual property rights or which otherwise includes objectionable material of any kind or nature, that encourages or engages in conduct that could constitute a criminal offence, give rise to civil liability or otherwise violate any applicable local, national or international law or regulation or which has a disruptive influence on the normal flow of a message board. You must not impersonate any other person or entity, whether actual or fictitious. If you feel that any of the terms and conditions have been broken by users, please email the Trustees or the Administrator. There are Rules of Use which govern activity on the message boards, and you must adhere to these at all times. These Terms and Conditions underwrite the Rules of Use.

(d) You must not use www.ectodermaldysplasia.org in a way that might reasonably be expected to cause the same to be interrupted, damaged, rendered less efficient or which could in any way damage the operation of another's computer.

(e) The Ectodermal Dysplasia Society reserves the right in its absolute discretion at any time to edit, alter, delete or move any material whatsoever posted to, appearing on, or distributed by www.ectodermaldysplasia.org and you. We also reserve the right, at our sole discretion, to terminate a user's access to the message board(s) or chat room(s).

7. Intellectual Property
(a) The Ectodermal Dysplasia Society owns the copyright of, and other intellectual property rights, in www.ectodermaldysplasia.org and its contents. "Rights" means copyright, database rights, trade marks, design rights and other intellectual and proprietary rights of whatever nature, anywhere in the world. You acknowledge that (i) The Ectodermal Dysplasia Society is protected by these Rights; (ii) these Rights are valid and protected in all media and technologies existing now or later developed; and (iii) except as explicitly provided otherwise, these Terms and Conditions and applicable copyright, trademark and other laws govern your use of such Rights.
(b) You may view, print, download or store extracts from www.ectodermaldysplasia.org for your personal, non-commercial reference without alteration, addition or deletion. You may not otherwise copy, replicate, distribute, publish, commercially exploit or otherwise transfer any www.ectodermaldysplasia.org material or content without prior consent.
(c) By submitting content, which shall include your member name to any public area of www.ectodermaldysplsia.org, including message boards, you grant The Ectodermal Dysplasia Society a royalty-free, perpetual, non-exclusive license to use, reproduce, modify, adapt, publish and translate such content for the purposes of the online community to supply information, promote services and offer interaction and communication between users of the community.

8. Limitation of liability
The Ectodermal Dysplasia Society does not guarantee that access to this website will be uninterrupted; that this website will be free from viruses or that this website cannot be tampered with by third parties. This website and the information are provided on an 'as is' basis, with no warranties of any kind whatsoever, either express or implied, including, but not limited to, any warranties or any implied warranties of merchantability or fitness for a particular purpose. Use of this website and the information is entirely at the user's sole risk. In no event will The Ectodermal Dysplasia Society be liable for any damages whatsoever arising out of or related to this website. Your sole and exclusive remedy for dissatisfaction with this website and/or information is to stop using the site and the information.

9. Modification of the Terms and Conditions
The Ectodermal Dysplasia Society may modify the terms of this agreement on this site. You agree to periodically review this agreement to be aware of any such revisions. Should the revision be unacceptable to you, you agree to stop accessing this site. Your continued use of this website following such notification of any such revision(s) shall be deemed as acceptance of and agreement to abide by all such revisions.

The Ectodermal Dysplasia Society is a registered charity in England No. 1089135.
The registered office is:
The Ectodermal Dysplasia Society
108 Charlton Lane
Cheltenham
Glos
GL53 9EA
England