Useful links
ED International Links
The Ectodermal Dysplasia Society has links with the following ED groups:
- America - National Foundation for Ectodermal Dysplasias (NFED)
- Belgium - Ectodermale Dysplasie Nederland
- Canada - Canadian Society for Ectodermal Dysplasia
- Denmark - Ectodermal Dysplasia Dk
- France - Association Francaise Dysplasies Ectodermiques (AFDE)
- Germany - Selbsthilfegruppe Ektodermale Dysplasie e.V.
- Italy - Associazione Nazionale Displasia Ectodermica (ANDE)
- Norway - Contact through Tako Centre, Lowisenberg Diakonate Hospital, 0440 Oslo
- Spain - Asociacion de Afectados Por Displasia Ectodermica
- Sweden - Svenska Ed-föreningen
- Turkey - Ectodermal Dysplazi Turkye
To contact these organisations please click the world map to access their websites.
Other useful links
Click on the relevant link below and you will be taken to their website:
R.N.I.B
Fight for Sight
Changing Faces
Contact a Family
Cleft Lip & Palate Association
Carer's Allowance
Disability Living Allowance
Incontinentia Pigmenti International Foundation
British Society of Paediatric Dentistry
British Society for Disability and Oral Health
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