Useful links
ED International Links
The Ectodermal Dysplasia Society has links with the following ED groups:
- America - National Foundation for Ectodermal Dysplasias (NFED)
- Australia - Australian Ectodermal Dysplasia Support Group (ozED)
- Canada - Canadian Ectodermal Dysplasia Syndromes Association (CEDSA)
- Denmark - Ectodermal Dysplasia Dk
- France - Association Francaise Dysplasies Ectodermiques (AFDE)
- Germany/Austria/Switzerland- Selbsthilfegruppe Ektodermale Dysplasie e.V. For their FORUM click here and then go to FORUM
- Ireland - Ectodermal Dysplasia Society
- Italy - Associazione Nazionale Displasia Ectodermica (ANDE)
- Mexico - Aasociacion Mexicana de Displasia Ectodermica Mariana, A.C (AMDEM)
- Netherlands/Belgium/Luxemburg -Ectodermal Dysplasia the Netherlands
- Norway - Norsk ED fororening
- Spain - Asociacion de Afectados por Displasia Ectodermica (AADE)
- Sweden - Svenska Ed-föreningen
- Turkey - Ektodermal Displazi Grubu - Turkiye
To contact these organisations please click the world map to access their websites.
Other useful links
Click on the relevant link below and you will be taken to their website:
R.N.I.B
Fight for Sight
Changing Faces
Contact a Family
Cleft Lip & Palate Association
Carer's Allowance
Disability Living Allowance
Incontinentia Pigmenti International Foundation
British Society of Paediatric Dentistry
British Society for Disability and Oral Health
Centre for Appearance Research
British Association of Dermatologists
Genetic Alliance UK
Carers Direct
Jeans for Genes
NHS Direct
EEC Syndrome International Group |
